What's the latest on the MS front?

by Michael S. Kaplan, published on 2006/02/17 03:01 -05:00, original URI: http://blogs.msdn.com/b/michkap/archive/2006/02/17/533910.aspx

(Nothing technical, you know the drill)

I realize that I have probably been a little remiss in posting about what is going on lately, and there are at least a few people I know who probably only read this blog because of that (not everyone is into the internationalization thing!).

I just got my latest Echocardiogram and my LVEF is still up high. Which is very good.

I was corrected on one point -- my previous LVEF values were not up to 75% as I posted previously, but that is probably a good thing as 75% is a bit too high, really. But I am in high 60s and have remained there.

(So if anyone tells me to "have a heart" I can tell them that I am, and that I can prove it. Though once again it is probably why I am not invited to some parties.)

Now someone freaked me out a little when they pointed out that a few folks on Novantrone ended up with secondary acute myelogenous leukemia (AML), which although better than Progressive Multifocal Leukoencephalopathy (PML), the thing that the Tysabri trial patients died from, is no picnic.

Which remind me -- it looks like Tysabri on its own has been deemed safe and is back on track for finishing up the trials, albeit at a more careful pace. This is very good news for a lot of people (especially including people who had been on the trial for years).

Now I may have taken myself out of the Tysabri running now that I am taking the Novantrone, though I will have to check with my neurologist to find out what she thinks. But even if it is true, I am not enough of a jerk to refuse to be happy for the people who can take it....

Anyway, I'll probably talk to my neurologist about the whole AML thing, just in case.

I was thinking the other day (as I crossed the street in my scooter) that the odds of one of those absent-minded drivers accidentally hitting me is like at least 10,000 to 1. Which suddenly made me uncomfortable thinking about how many streets I have been crossing -- how long before the odds catch up?

I got over it quickly, but I think I am going to be more careful from now on, just in case. :-)

So there is not much else going on -- symptoms seem pretty stable otherwise, and nothing seems to be getting worse. Which is always good news.

Even after all this time, I still have trouble with that aspect of medicine where a test that is positive, or a disease that is progressing, is a bad thing. But nothing is progressing, which is a good thing, and I like that.

Anyway, the reason I don't post about the MS thing as often is that things are going well. So try to understand if it is a while before the next time....

I'll post soon about music I have seen lately, including seeing Duncan Sheik last weekend in a very cool show. And I should be posting a bit about a font thing later today....

# bg on 17 Feb 2006 6:29 AM:

>I'll post soon about music I have seen lately - woohoo!

> And I should be posting a bit about a font thing later today - boo - sorry i mean wooho!


go to newer or older post, or back to index or month or day